- The primary goal is for patients and/or members of the public to actively control, direct and manage the research process.
- The role of researchers may be to train and support patient/public partners in the research process and in some instances, to help carry out the research process under the direction of the patient/public partners.
- Decision-making power lies with patient/public partners.
Important to remember:
- All decision-making with regard to the research process is made by patient/public partners, and the role of the researcher is to support them in the research process.
To learn more, check out our blog post: The Levels of Patient and Public Involvement