By ensuring health research addresses topics that are important to patients, caregivers, and the public, public and patient engagement improves research quality, appropriateness, acceptability, transparency, and relevance.
The ultimate goal of public and patient engagement in health research at CHI is to improve the health outcomes of ALL Manitobans, as well as enhancing the healthcare system.
Research teams have found that public and patient engagement helps to:
Identify research priorities that matter most to people living with the health issue being studied;
Shape and clarify research questions to reflect the needs and concerns of patients and the public;
Ensure proposed study methods are appropriate, acceptable, and sensitive to real-world contexts;
Select outcomes that are meaningful to patients, caregivers, and communities;
Ensure study materials provided to participants are accessible and easily understood;
Increase study participation;
Identify a wider set of research topics and new areas for research;
Allow interpretation of research findings from the perspective of people with lived experience to inform recommendations that can improve the lives of patients and the public;
Ensures research reflects public and patient interests and values; and
Ensures research money and resources are used efficiently to improve healthcare systems and services for everyone.