Guiding Principles of Engagement


Guiding Principles of Patient and Public Engagement in Health Research

Inclusiveness

Integrating diverse perspectives

Research that reflects diverse contributions

Ensuring all voices (including those often not heard in health research) are part of the process

Support

Public and patient partners are able to fully and meaningfully contribute

Creation of safe environments (physical, psychological and spiritual)

Use of anti-oppressive and trauma-informed approaches

Capacity-building: Access to training, education and compensation

Mutual Respect & Partnership

Value of experiential knowledge is recognized by all research team members

Co-Building

Patients, caregivers, the public, health researchers, healthcare practitioners, decision- and policy-makers all work together

Collaboration to identify problems and gaps; determine research priorities; and create and implement solutions

Co-Learning

Public and patient partners learn more about the research process

Researchers, health practitioners, policy- and decision-makers learn more about public and patient partner experiences and knowledge

Reciprocal Relationships

Shared power and decision-making throughout the research process

Co-ownership of research data and outcomes

Transparency, Honesty & Trust

Open and two-way communication

Development of guiding principles

Critical reflexive practice

Conflict resolution