The purpose of the Preparing for Research by Engaging Public & Patient Partners (PREPPP) Funding Award is to encourage and provide support for Manitoba health researchers, students, and community organizations to actively and meaningfully involve patients and the public in the early stages of their research project ― specifically in research priority-setting, design, and grant development.
The George & Fay Yee Centre for Healthcare Innovation (CHI) is the Manitoba SUPPORT Unit for the Strategy for Patient-Oriented Research (SPOR). A critical element of patient-oriented research, as it is defined by the Canadian Institutes of Health Research, is the active and meaningful involvement of patients and the public as partners in health research. At CHI, we define patient and public engagement in health research as:People with lived experience of a health issue, informal caregivers, families, friends and communities having a say in decision-making about the research process ― including research priorities, questions, outcome measures, design, methodology, data collection approaches, interpreting findings, and dissemination methods.
Evidence has demonstrated the importance of patient and public engagement in the early stages of priority-setting, research design and grant development, to ensure that:
- The research question is relevant to the needs and experiences of those living with the health issue being investigated;
- Relevant outcomes and outcome measures are being addressed by the proposed research;
- Data collection instruments reflect issues patients and the public want to see addressed;
- Issues pertaining to participant recruitment, information provided to participants, and consent procedures are well thought through; and
- Consideration is given to the level and extent of patient and public engagement in the study, assuming it is successfully funded.
In order to help facilitate and support Manitoban health researchers, students, and community organizations in engaging patients and the public in the early stages of their research, CHI will be offering 10 funding awards of $2,000 each. The Manitoba Primary and Integrated Healthcare Innovation Network (MPN) will also provide funding for one award that specifically targets primary and integrated healthcare.
- Dr. Geert 't Jong: Canadian Pediatric Drug Compendium
- Dr. Jennifer Protudjer: Pediatric food allergy and mental health: Learning from parents, providers and partners
- Dr. Todd Duhamel: Enhancing recovery after cardiac surgery by engaging patients in research development
- Dr. Kathryn Levine: Engaging women with intellectual disabilities and criminal justice involvement: A participatory action research project
- Dr. Patricia Thille: Addressing weight-related stigmatization in health care
- Dr. Robin Westmacott: Engagement in Research and Healthcare Decision-Making Regarding Gender Confirming Surgery Referral
- Dr. Kendra L. Rieger: Engaging Patients and Elders in an Exploration of Indigenous Women’s Experiences of Breast Cancer Using Digital Storytelling
- Dr. Sadeesh Srinathan: Patient Engagement: ThORacic Surgery CoHort Study (TORCH)
- Dr. Alex Singer: A Population-based Assessment of the Long-term Impacts of Unnecessary Investigations and Treatments on Patients and the Health System
- Dr. Christine Leong: Insights into the Use of Sedative-Hypnotic/Anxiolytics in Primary Care: A mixed-methods study to develop self-management strategies in the community
- Dr. Kellie Thiessen: Welcoming the ‘Sacred Spirit’ (child): Connecting Indigenous and Western ‘ways of knowing’ to inform future policy partnerships to optimize maternal child health service delivery initiatives in remote Canadian regions
- Dr. Alex Aregbesola: Reshaping Type 2 Diabetes Care in Manitoba: Considering Remission as an Option
- Dr. Alex Korall: Engaging Patient and Public Partners in a Scoping Review to Map the Extent, Nature and Range of Research Activity on James Lind Alliance Priority Setting Partnerships
- Dr. Anna Chudyk: Reflecting on Models and Frameworks of Patient Engagement
- Dr. Dylan MacKay: Assessing Patient Acceptance of Alternate Dietary Therapies to Improve Protein Malnutrition in Patients with Chronic Kidney Disease (CKD)
- Dr. Murdoch Leeies: Intravenous Immune Globulin in Septic Shock (InVIGIS) to Improve Outcomes in Patients with Life-Threatening Infection
- Dr. Gayle Halas and Dr. Shelley Zieroth: Heart Failure Referral Pathways
- Dr. David William Allen: Software Electrocardiogram Interpretation and Transmission to Prevent Treatment Delay in ST-Segment Elevation Myocardial Infarction (SCI-NET)
- Dr. Kristy Wittmeier and Dr. Kerstin Gerhold: Collaborating to improve care for children and teens with chronic pain
- Dr. Maya M. Jeyaraman: Effectiveness of interventions and strategies to reduce emergency department wait times: A systematic review
- Michelle Meade and Melissa Fuerst: Service Integration for Young Adults with Type 2 Diabetes
- Dr. Naser Ibrahim: Engaging First Nations communities in research priority decision making: What is the next Research Question that needs to be answered in your community?
- Dr. Natalie Riediger: On the Ground: Research Engagement at the Bell Tower
- Dr. S. Michelle Driedger: Changing the patient-HCP dialogue: fostering trust through joint clinical decision making
- Dr. Brett Houston, MD: A Multicentre, Double-blind, Randomized, Placebo Controlled Pilot Trial to Determine Whether Administration of Tranexamic Acid (TXA) Reduces Blood Transfusion in Patients Undergoing Major Non-cardiac Surgery
- Leanne Dunne: Development of a Patient Engagement Tool: A Book Designed by Youth for Youth with Type 2 Diabetes