What is the Patient and Public Engagement Collaborative Partnership?
The Patient and Public Engagement Collaborative Partnership (or the ‘Partnership’) works with CHI and health researchers to co-create and advise on authentic engagement strategies for working with patients and the public in health research. This means having patients and the public involved in research, not only as research participants, but as active partners throughout the research process, including:
- Deciding what priorities and health-related questions research should address;
- How people should be recruited to research studies;
- How research studies should be conducted; and
- Collecting and analyzing data.
The Partnership also advises on health research policies, resources, tools, services and programs.
To date, the Partnership has helped co-create, inform, and/or make changes to:
- CHI’s PREPPP Award (www.chimb.ca/events/PPE-Funding-Award);
- CHI’s KnowledgeNudge blog series (www.medium.com/knowledgenudge) about community engagement and trauma-informed approaches to engagement;
- CHI’s Patient Engagement Lunchtime Learning Series (https://chimb.ca/pages/212-lunchtime-learning-series-on-patient-and-public-engagement-in-health-research);
- CHI’s Patient and Public Engagement Platform Champions (www.chimb.ca/events/patient-engagement-platforms-champions-program); and
- CHI’s Patient and Public Engagement Strategy
As well as being involved as members of various SPOR National groups (including the National Data Platform), and various health research projects and programs.
Information About the Role of Partnership Members
Members bring unique perspectives and insights to discussions and decision-making as a person with lived experience of a health issue and/or healthcare service user in Manitoba. They work to:
- Bring the patient/community lens to discussions and decisions, raising questions and concerns that are considerate of diverse needs of Manitobans;
- Actively collaborate in shared decision-making, helping to shape the strategic direction of CHI; and
- Help identify possible areas of opportunity for health research.