- The primary goal is for patients/members of the public actively control, direct and manage the research process.
- The role of researchers may be to train and support patient/public partners in the research process and in some instances, help patient/public partners in carrying out the research process under the direction of the community.
- Decision-making power lies with patient/public partners.
Important to remember:
- All decision-making with regard to the research process is made by patients and/or members of the public, and the role of the researcher is to support communities in the research process.