Participatory Decision-Making


Participatory Decision-Making

Participatory Decision-Making is a process that allows patient/public partners to make research decisions. Additionally, it can be used to help patient/public partners come to a consensus around research priorities that need to be addressed in a research project. Participatory Decision-Making is all about finding common ground and decisions that are acceptable to all patient/public partners. With consensus, everyone in the group must agree on a decision.

 

Participatory Decision-Making has nine steps:

1. Define the research decision that needs to be made (e.g. "We need to decide on research priorities that mean the most to us," "We need to decide on data collection approaches that are sensitive and appropriate to the real-world context of patients," "We need to decide upon ways to interpret the data,");

2. Share experiential knowledge with regard to the research decision as a group;

3. Brainstorm potential research decisions (e.g. different research priorities, data collection approaches, ways to interpret the data);

4. Discuss all of the different suggested research decisions (e.g. different research priorities, data collection approaches, ways to interpret the data);

5. State the list of research decisions (e.g. different research priorities, data collection approaches, ways to interpret the data) ;

6. Debate and discuss;

7. Restate the final list of research decisions (e.g.  research priorities, data collection approaches, ways to interpret the data);

8. Test for consensus; and

9. Consensus or major objections.

 


Additional Resources:

1. Participatory Decision-Making: An Introduction

2. Facilitator's guide to participatory decision-making