News: Self-management App for Mild-Hemophilia World’s First
Press Release: Self-management App for Mild-Hemophilia World’s First
Self-management App for Mild-Hemophilia World’s First
Video available here
Kathy Mulder talking about the App on Breakfast Television
More on the HIRT? app as seen on Shaw TV
HIRT? App in May/June 2015 Wave magazine
(December 4, 2014)
After helping young men with mild hemophilia recover from thigh injuries which kept them off work for close to a year, physiotherapists with the Manitoba and Saskatchewan Bleeding Disorders Programs, Kathy Mulder and JoAnn Nilson, wanted to find a way to help similar clients easily access important information about their condition.
A multidisciplinary team from The George and Fay Yee Centre for Healthcare Innovation located at Health Sciences Centre Winnipeg, the University of Manitoba, the Saskatoon Health Region, the University of Saskatchewan and MITACS have developed an app called HIRT? – Hemophilia Injury Recognition Tool - that will provide assistance in identifying an injury needing medical attention. It will also facilitate contact to a Hemophilia Treatment Centre.
The app describes symptoms of bleeding, explains first aid management, and provides an alarm to remind the person to reassess their symptoms until the risk of re-bleeding is over. HIRT? also instructs the user when to seek medical care and contains the contact information for the closest Hemophilia Treatment Centre.
The app is now available in French and English. It can be downloaded for free from the Google and Apple stores and information is available through http://www.hemophilia.ca/.
Affecting only men, Hemophilia is a genetic disorder in which blood does not clot properly. People with milder forms of the disease do not experience frequent bleeding problems, and may not recognize symptoms of a more severe injury.
“There is a gap for these young men in getting the information they need to help them identify whether they are dealing with a minor injury or one that could result in a major bleed, and how to proceed,” explains Mulder. “These young men did not want another booklet. They wanted an app so they would have the tools they needed at their fingertips. ”
“The term ’mild’ hemophilia can be misleading. The long term repercussions that can result from a poorly managed bleed can be very severe and disabling,” says Nilson. “Working with this particular group of patients can be very challenging. I am excited to see the app available for them to use.”
“I really like the feature that reminds me to reassess my bleed, as a mild it's easy to forget or ignore minor bleeds,” says Jacob Figler, a young man from Winnipeg with mild hemophilia. “This app will help me keep a closer watch on my body and by doing that hopefully prevent further injury. I will be telling my two brothers about it too.”
About The George and Fay Yee Centre for Healthcare Innovation
The George and Fay Yee Centre for Healthcare Innovation is a partnership between the University of Manitoba and the Winnipeg Regional Health Authority. The centre houses seven unique platforms, each staffed with experts and leaders from all disciplines in academia and practice. We work to ensure that the latest research and evidence are translated into improved patient outcomes, enhanced patient experiences and improved access to care for Manitobans. Learn more at http://chimb.ca/
About HSC Winnipeg
Health Sciences Centre (HSC) Winnipeg is the largest health care centre in Manitoba. We are an interdisciplinary team of nearly 8,000 staff and volunteers who serve people in Manitoba, northwestern Ontario and Nunavut. HSC is the designated Trauma Centre for Manitoba, as well as the centre for transplants, burns, neurosciences and pediatric care. Our highly skilled teams of professional staff provide acute care and continuing care. As an operating division of the Winnipeg Regional Health Authority, we provide comprehensive diagnostic, outpatient (ambulatory) and inpatient services that support the physical, medical and emotional needs of the people and communities we serve. Learn more at www.hsc.mb.ca
About Saskatoon Health Region
Saskatoon Health Region is the largest health region in Saskatchewan. We are an integrated health delivery agency of over 14,000 physicians, staff and volunteers serving residents in more than 100 cities, towns, villages, RMs and First Nation communities as well as being a tertiary care centre for the province. Saskatoon Health Region provides a comprehensive range of services and programs, including but not limited to, hospital and long term care, public health, home care, mental health and addiction services and will be the home to a new provincial maternal and children’s hospital. Learn more at www.saskatoonhealthregion.ca
Mitacs is a national, not-for-profit organization that has designed and delivered research and training programs in Canada for 15 years. Working with 60 universities, thousands of companies, and both federal and provincial governments, we build partnerships that support industrial and social innovation in Canada. Learn more at https://www.mitacs.ca/en
For more information:
Melanie Fatourus-Richardson, Communications Specialist