Round: CHI Grand Rounds - Sept 21 - Developing a Meaningful Research Agenda through Integrated Fami...


Round: CHI Grand Rounds - Sept 21 - Developing a Meaningful Research Agenda through Integrated Family Engagement in Research

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September 21, 2016, 12:00 to: 13:05
Theatre B 730 William Avenue Winnipeg Manitoba
Team: Events, Training & News

CHIMb.ca
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Round: CHI Grand Rounds - Sept 21 - Developing a Meaningful Research Agenda through Integrated Family Engagement in Research

Team: Events, Training & News

Location: Theatre B 730 William Avenue Winnipeg Manitoba

September 21, 2016, 12:00 to: 13:05

Description


To view the poster for this event, click here.

To view the video of this presentation, click here.

 

Title: Developing a Meaningful Research Agenda through Integrated Family Engagement in Research

About the Presentation:

Recent years have witnessed growing international interest in the engagement of patients and family members in health research, not merely as participants, but as full partners in all aspects of the research process. As Canada’s largest children’s rehabilitation hospital, a commitment was made to ensure the relevance, appropriateness, and accountability of research to patients and families. Given the establishment of a Family Engagement in Research Framework at Holland Bloorview Kids Rehabilitation Hospital, presenters will share their experience in launching this program, and provide an opportunity for participants to explore engagement at their organization.

DATE September 21, 2016 • 12pm- 1pm

Where: Theatre B, Basic Medical Sciences , 730 William Ave

Live Webcast for this event is will be available at: http://stream.bann.umanitoba.ca/theatreb.html

About the Speakers:

In over 20 years of navigating the developmental sector, LORI BEESLEY has fostered partnerships between clients, families, and staff, using the principles of client and family-centred care. She currently manages the Family Leadership Program at Holland Bloorview and furthers engagement by coordinating requests across the hospital and the Bloorview Research Institute. Lori is integrated in the expansion of family engagement in research. Lori leads two Parent Talks, which engage experts and families in peer support settings for families of children with cerebral palsy and other physical disabilities, as well as children with autism spectrum disorder and other developmental disabilities. Lori’s personal experiences as a parent of a young man with disabilities helps families in an empathetic way.

JAN MAGEE is a family leader at Holland Bloorview Kids Rehabilitation Hospital and the vice-chair of Holland Bloorview’s Research Family Engagement Committee. She has been a volunteer and advocate for over 14 years and is a parent of 2 boys, one a teenager with Cerebral Palsy. She has sat on several committees within the hospital and was one of the first Family Leaders to sit on the Quality Committee, a sub-committee of the Board of Directors for Holland Bloorview. She is currently working as a Research Assistant on an e-mentoring study to assist youth and young adults with physical disabilities transition to employment and/or volunteer opportunities. She is also on the Executive Committee for the Board of Directors for the Ontario Federation for Cerebral Palsy and has participated in various initiatives for the Ontario March of Dimes. She is passionate about client and family involvement to promote the best quality care and research for children and youth with disabilities.

*These rounds are accredited under The Royal College of Physicians and Surgeons of Canada.

 

Web Links and Embedded Content

  • https://www.youtube.com/watch?v=qHnluA8GzjY&t=302s

Map

Location: 730 William Avenue, Winnipeg, Manitoba, Canada